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This page was written by
Eric Emerson
Estimating age and gender-specific death rates
We need to know how what proportion of people with learning disabilities die in each age group. This is important for two reasons:
To estimate how many there will be who need care in future years, and
As a measure of the effectiveness of health care,
The numbers collected nationally now do not give us good estimates. So we commonly use numbers taken from a small number of areas with particularly good information systems. However these places may not be the same as others.
Recently we have worked with a number of different areas with local learning disabilities registers and information systems. We have been working out the proportions who die each year across larger and larger areas. This work is described in our report on Estimating Future Needs for Adult Social Care for People with Learning Disabilities in England.
We plan to establish a big network of areas with information systems which can give us annual estimates of age and gender-specific mortality among people with learning disabilities who use or are known to learning disabilities services. We will get this information from all local agencies in these areas. Using this we will publish annually updated estimates of age and gender-specific mortality among people with learning disabilities.