Let's Talk

The materials for the 2012 SAF are all now up on the project page at www.ihal.org.uk/projects/self_assessment/materials2012

I have yet to really sit down and think about this, but this consultation looks like a real opportunity to promote the role of the LD Nurse and other staff working in LD services. I think it also presents an opportunity to consider and suggest what LD evidence should be collected nationally and locally and be used in the JSNA and to promote training/working across staff/professional workstreams. What do other people think?

This consultation document is on the resource section of the website. Lesley Russ and Crispin Hebron have offered to pull a response together from the South West and would welcome any contributions from the South West Health Network. The consultation closes on the 18th May.

The final draft of the business case is now on the resources section of this discussion thread. Trevor Eardley and Geoff Baines will be talking about he business case at the conference on the 18th April (see the events section of the website)

Hi. I would like to know how the statistics are measured for people with LD having paid work. If someone just has 2 hours of paid work would that count towards the statistics?

The Cardiff Health Check has been updated to reflect changes in health promotion policy since the initial version, and feedback from various professionals. A copy is available in the resource section of this discussion group.

Hi Jackie,

The problem with this is small numbers. I have calculated median ages at death of people with learning disabilities for local areas, but in some places these make no sense - areas with apparent median age under 5 set out below). For example in one London borough, the figure is under 1 year. This is partly because of small number problemss, partly from incomplete reporting of LD on death certificates and partly because of resettlement of adults with LD from London outside the capital - so they live in London and then move to and die in Kent or Essex etc. (BLACKBURN WITH DARWEN UA - median age 3.5 (10 deaths), CITY OF LONDON - median age 0 (0 deaths), EALING - median age 3 (19 deaths), HACKNEY - median age 1 (10 deaths), ISLES OF SCILLY UA - median age 0 (0 deaths), KENSINGTON & CHELSEA - median age 1 (8 deaths),

Hi sally You can gather evidence on this via the UK health and Learning Disability Network at http://www.ldhealthnetwork.org.uk/forms/healthjoin Janet

is anyone willing to share how they have evidenced any health gains for people using health action plans and annual health checks

Following our discussion at the meeting on the 6th it would be really helpful to know the following: Are the supported living services which are not supporting people to go to health appointments etc. providing services 24/7 or just a few hours of support? Have there been attempts to resolve issues locally, and if so, what was the result? Are you able to give details of specific areas where this is an issue, and if possible contact details of the relevant service manager?

Hi Gyles I know that you have already done so work on this. As mortality is probably the biggest indicator of health inequalities, I would suggest the JSNA should include identification of the mortality figures for people with LD in comparison to the general population. Ideally thiis should also include figures for those 'at risk'(people with PMLD), though I recognise this is difficult to obtain. Jackie F

South Central have done a peer review of their acute hospitals. The easy read version of the report is avaliable in the resources section.

Can people suggest what indicators they would like to see the LDPHO providing here. I have attached (in respources - a file called JSNA notes 110914) some notes on this as a starting point for discussion.

Hi thank you very much for your responses to my question. this is really helpful, and it is great to get the views of a carer as well

Many thanks Fiona

Hi Thank you for keeping me notified it is very much appreciated Regards Andrew

Hi Andrew. As you can see the report is now published, Gyles

This sounds like a very good idea and will help to identify common themes / issues. Regards, Katy

Yes a good idea to share results. Janet

We are hoping to publish the final version of the audit tool along with an easy read version by the end of July. When we have talked about it at events, a number of participants said it would be good to share the results of their local audits with others. We could use this discussion group to do that as there is a facility to upload resources. What do people think?

Good idea re Michail. Will put him on for 1.30