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Sharon Hambley
Tue 6th Sep 8:55AM
Commented on the discussion Self Advocacy Groups/Conference?? on the group Advisory Group

Thank you for the reply Sue. The group consult for Cornwall Foundation Trust. The trust support people when they need extra support because they have a learning disability as well as health needs. They are interested in many aspects of health so it is difficult to pinpoint one topic. However, they are particularly interested in ensuring people are not confined to institutional care and/or ensuring people who are supported in units such as Winterbourne have good effective care and support. The group have recently designed a booklet to support Annual Health Checks. The booklet helps a person to think about all of the questions that should be asked at an Annual Health Check. This also helps carers/support staff to gather information before the check with the GP/Nurse. The booklet allows the GP/Nurse to write beside each check thus forming the basis for the person's health plan. The group has some funds to travel so would be able to attend one meeting. They can also join a meeting electronically if necessary. They feel it would be useful to link with other groups in the Country to learn and share information. I hope this helps.

Sue Turner
Tue 6th Sep 7:59AM
Commented on the discussion Self Advocacy Groups/Conference?? on the group Advisory Group

Hi Sharon We recently ran two events about health and people with learning disabilities but it is difficult for us to run events in Cornwall as we only run eight a year and need to run them in places that people can easily reach. When we run events in the South West they tend to be in Bristol. We have more events coming up. They are all on the this website. Are there any particular areas of health your members are interested in?

Sharon Hambley
Fri 2nd Sep 3:01PM
Commented on the discussion Self Advocacy Groups/Conference?? on the group Advisory Group

Hello I help the Cornwall Learning Disability Advisory Group. The are thinking about either going to a conference to talk about health for people who have a learning disability or have a conference in Cornwall. What work are people doing at moment? Are there any conferences that would be interesting for people from Cornwall?

Mike Wimmer
Thu 21st Apr 11:19AM

Dear Group Members. I have been asked to provide an update on the coverage of Learning Disability Health Checks for 2014/15 in my local CCG area and I have downloaded the data from the HSCIC site. Can I just check is there a consensus on how to correctly report the coverage rate? Previously this was calculated as the number of health checks done in the CCG area divided by the number on the QOF LD register for the CCG. The issue with this method for 2014/15 is that the QOF LD register counts people of all ages but the health checks are for those aged 14+. Regards. Mike Wimmer

Gyles Glover
Thu 8th Oct 10:37AM
Commented on the page Estimates for local areas

The new Health and Care project should finally give us some satisfactory answers about the variation in demography of people with learning disabilities around the country. The problem is that this cannot realistically be modelled since a large component of it is determined by moves that people make in relation to residential care. G

Julie Young
Mon 11th May 11:30AM

Hi Gyles Glover

I am trying to report out to a couple of CCG in our area, but they are not co terminus to a LA i.e. HAST CCG covers - Hartlepool and Stockton, South Tees CCG - Redcar and Middlesborough

The AHC data has been issued by CCG area - can we get it broken down at summary and practice level - split by LA area?

Hal Kennard
Fri 31st Oct 9:55AM

I would like to let people know about a new national music festival just for people with learning difficulties

www.newforestspectrum.org

please help me spread the word about this not for profit event sponsored by two charities in July 2015.

halkennard@gmail.com

Hal Kennard
Fri 31st Oct 9:53AM

I would like to let people know about a new national music festival just for people with learning difficulties

www.newforestspectrum.org

please help me spread the word about this not for profit event sponsored by two charities in July 2015.

halkennard@gmail.com

Hal Kennard
Fri 31st Oct 9:52AM

I would like to let people know about a new national music festival just for people with learning difficulties

www.newforestspectrum.org

please help me spread the word about this not for profit event sponsored by two charities in July 2015.

halkennard@gmail.com

Hal Kennard
Fri 31st Oct 9:50AM

I would like to let people know about a new national music festival just for people with learning difficulties

www.newforestspectrum.org

please help me spread the word about this not for profit event sponsored by two charities in July 2015.

halkennard@gmail.com

Sue Turner
Tue 26th Aug 3:32PM

One of the things that has been highlighted as lacking in LD nursing research is the development of linked programmes of research. With that in mind a suggested list of topics for undergraduate/ MSc/ MRes/MPhil/ PhD dissertations/ theses has been put together in relation to the HEF and this is in the resources section for you to look at. If you are trying to identify a focus for your dissertation you might like to see if there is anything there that interests you. The only thing that is being asked is that you let Sue Turner (email address on attachment) know what you are working on so that an overview of the programme of research can be maintained. This will help to develop the evidence base supporting the HEF, provide a central point for information and enable you to focus your work on something that will impact more widely on practice.

Gyles Glover
Tue 19th Aug 11:37PM

Hi Kym,

Sorry, this is a technical topic rather beyond my knowleedge. I would send a copy of the check - is it the Cardiff Protocol? to the System help lines and ask if they think it is doable in their systems. I'd be surprised if they say no.

Best,

Gyles

anderson kym
Thu 14th Aug 3:59PM

Dear All,

I am leading on a CQUIN project looking at improving the quality and quantity of AHC'S. The local GP Practices use EMIS/Vision/TPP and System 1. The feedback that I am getting is that the documents (ie Welsh Health Check) are not compatible with the electronic systems. The practices are not able to make this fit as a template on their systems. Do you have any advice on this please, many thanks

Kym Anderson (Southern Health NHS Foundation Trust)

Sue Turner
Mon 21st Jul 10:00AM

Please note new resource from Trafford Council. A learning disability team assessment adapted to the HEF indicators - in the resources section.

anderson kym
Wed 30th Apr 3:46PM
Commented on the discussion End of Life Care on the group Advisory Group

Hi Amanda, we have had some information about this and I have some examples of good practice from Southern Health learning disabilties division that I would like to forward to you. Could you tell me where to send them please? Many thanks, Kym

Janet Cobb
Mon 17th Mar 11:35AM

Hi Martin see the UK health and learning disability network Hosted by the Foundation for People with a Learning Disability (FPLD)

Once a member you can mail out nationally for help on this issue

To join log on to http://www.ldhealthnetwork.org.uk/forms/healthjoin or http://www.learningdisabilities.org.uk/ldhn Open network with a focus on health and adults with a learning disability. Janet Cobb is the network facilitator and an associate consultant with FPLD www.learningdisabilities.org.uk For more information mail jcobb@learningdisabilities.org.uk or janet@jan-net.co.uk

Martin Seymour
Sun 16th Mar 8:16PM

I'm a PH registrar and I've been asked to look into models of service delivery for home care services for people with learning disabilities. Currently these services in the County are provided by a specialist learning disabilities care provider but commissioners are asking whether a ‘generic’ Support to Live at Home service could meet these needs. The expectation would be for the appointed providers to be able to deliver appropriate care/support to ‘all’ customers.

Not surprisingly there is a wide debate about whether ‘specialist’ LD Home Care services need to be retained, rather than more generic service being procured.

I have been asked to review available evidence and provide a high level summary to support both sides of the argument and was wondering if anyone else has been involved in a similar debate.

Does anyone have any experience of different models of service delivery (efficacy and effectiveness, value for money, impact on inequalities etc.) or any case studies, policy documents, commissioning guidance etc. that you can share?

Kind regard Martin

amanda kenney
Fri 24th Jan 2:40PM
Commented on the discussion End of Life Care on the group Advisory Group

At the last Advisory Group meeting we talked about end of life care. We asked people to let us know what is important to them about end of life care and what they would like to see IHaL include in the Reasonable Adjustments in End of Life Care report. This discussion thread is an opportunity for people to share their ideas and thoughts so that the IHaL team can take on board your views. Thank you for sharing your opinions and ideas. Amanda

mandy setterfield
Tue 31st Dec 12:25PM

Hi. Following on from Pene comments, i have been asked to look at developing an operational protocole/procedure for implementing the HEF in Kent. Does any one have a operational protocle they would be willing to share with me? Or share their experiences of writting one? Thanks

Catherine Mills
Wed 13th Nov 10:35AM

I am in the process of finalising our LD SAF submissions and have a significant amount of evidence that needs to be appended to the 1000 characters on the website. After discussions with our IT team and Information Governance colleagues, we have concluded that the best way to do this is to publish the evidence on our intranet pages and then grant password protected access to the IHAL team, however our IG colleagues still have some concerns about security in allowing people outside the organisation to have access to internal information so we would need to seek some assurances from IHAL about only accessing the Intranet content that is relevant to the Self Assessment Process. I assume other organisations/areas will have reached the same conclusions and raised the same issue, so could you advise how you intend to provide this assurance please?